OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections. This crisis presented a unique opportunity to understand how a viral infection - in this case COVID-19 - may develop into ME/CFS in some patients. OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.” alone suffer from ME/CFS the COVID-19 pandemic could at least double that number. Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection - more commonly known as Long COVID or Post-COVID Syndrome - to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available. Open Medicine Foundation leads groundbreaking international study ofĪGOURA HILLS, CALIF. Through Linda’s active participation, OMF is united with this project to help improve patient care worldwide. This work has expanded into a strategic effort to bridge the gap between science and medicine and better the clinical outcomes for patients everywhere. After decades without clinical guidance, Cindy and Mary proposed an opportunity for the leading physicians to collect their clinical experience and intuition about ME / CFS. Lucinda (Cindy) Bateman and Mary Dimmock, parent of a son with ME / CFS. Andy Selinger – Family Medicine, Hamden Connecticut Irma Rey – Environmental Medicine, Miami, Florida Richard Podell – Internal Medicine, Summit, New Jersey Dan Peterson – Internal Medicine, Incline Village, Nevada Morris Papernik – Internal Medicine, Hartford, Connecticut Jose Montoya – Infectious Diseases, Stanford University California Nancy Klimas – Immunologist, Miami, Florida David Kaufman – Internal Medicine, Mountain View, California Anthony Komaroff – Internal Medicine, Boston, Massachusetts
Susan Levine – Infectious Disease, New York, New York Theresa Dowell – Family Nurse Practitioner, Flagstaff, Arizona Alison Bested – Hematological Pathologist, Miami, Florida Lucinda Bateman – Internal Medicine, Salt Lake City, Utah The physicians in this strategic group include: Advance the ME / CFS research agenda with data, clinical observations, and intuition-based findings from expert practice. This feedback will include recommendations for treatment trials, identification of possible illness subsets, and observations of illness presentation.Build the ranks of informed physicians nationwide through medical provider educational materials and programs.Summarize key diagnostic and treatment methods and the supporting peer-reviewed science and best clinical practice to inform standards of care for ME / CFS.providers with strong expertise in ME / CFS. Enhance and grow a collaborative network of U.S.The ME / CFS Clinician Coalition intends to change that through these primary goals and strategic outcomes:
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But the diagnostic criteria have yet to be widely adopted by the medical community and doctors still lack knowledge about how to treat this devastating disease. The Institute of Medicine (IOM) published a landmark report in 2015 providing the tools for physicians to make the diagnosis of ME / CFS. This event is significant because it marks progress and forward momentum for this dedicated group as they tackle the ambitious goal of mainstreaming ME / CFS in the medical community and improving the clinical care of people with ME / CFS. ME / CFS experts as they convene for the Second Annual ME / CFS Clinician Summit on March 15-16 in Salt Lake City, Utah. Linda Tannenbaum, OMF Founder and CEO/President, will join the leading U.S.
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